My New Reality After Retinal Surgery

In April 2017, I had surgery to repair a complicated retinal detachment, the consequence of a vitreous hemorrhage in my right eye. To bring awareness of the symptoms and dangers of retinal tears and detachments, I’ve been blogging about my experience. (Catch up here) The following notes are from my post-op diary. All observations refer to my right eye.

Two days post-op:

I can see undistinguishable shapes. My eye is swollen and bruised, the eyeball is bright red and there’s ugly blobs in both corners. I have lots of pain, both in the eye socket and the eyeball.

One week post-op appointment:

I told the ophthalmologist I still have double vision. With both eyes open, I see a blurry image angling off the left side of the clear image. He couldn’t say if this will improve.

When I asked about removing the silicon oil, which was injected in the eye cavity during surgery, he said it might never come out. I didn’t ask why.

My pupil always stays large, and he said the Combigan eye drops can cause this. It should improve about three weeks after I stop using the drops.

I’m still not allowed do anything for another week, then can slowly become more active until I’m back to regular routines in a month. I hate doing nothing all day, but the more I do, the more my eye hurts, and that can’t be good.

I see colours and shapes, but no details. My eye is less swollen, but still red. The doctor assured me the fatty stuff in the corners will eventually go away.

Amazing how strangers will ask what happened when I wear the shield in public.

Two weeks post-op:

My eyeball isn’t as tender, although it often feels like there’s grit in my eye. I get bad headaches, and any exertion intensifies the eye socket pain, which reminds me to slow down.

External bruising is fading, and the skin around my eye looks more normal. Eye redness is still visible.

A bump has developed on the outside edge of the iris. Blobby stuff is shrinking.

Four weeks post-op:

Despite not taking Combigan drops for two weeks, my pupil’s still nonreactive, and lights really bother me. I can recognize most shapes, but can’t see details. When I stand quickly, my right eye vision goes black, then slowly clears up. Hopefully it’s just the oil sloshing around. Eye pain isn’t as continuous.

Five week post-op appointment:

The ophthalmologist thinks my pupil should be more reactive by now, so it might never function normally again.

My right eye pressure (IOP) is too high at 32mmHG, while the left eye is 15mmHG, so he prescribed Azarga drops twice a day to lower the pressure. He’s concerned I might be developing secondary issues, but didn’t elaborate. I should’ve asked him to explain.

The earliest he’ll consider removing the oil is three and a half months post-op. I told him I’m pleased I haven’t lost my middle vision despite having had a complete detachment, and I feel I might have reasonable sight once the oil is removed. He told me not to have that expectation.

I asked if it’s the oil causing me to have momentary blackness when I stand up. He’s never heard of this before.

Seven weeks post-op:

I can now read the alarm clock using just my right eye—barely—so the vision has improved somewhat. Eye socket pain continues to diminish, except when I’m active.

Nine weeks post-op:

With reading glasses on, images on TV are sharper. This is the first time my right eye has responded to magnification.

Bubbles, which float above an oily looking horizontal line, are becoming more frequent and numerous. They move with my eye, bouncing around the upper half of my field of vision.

I get bad headaches when in bright sunshine, even if I’m wearing sunglasses. I rarely get eye socket pain anymore. My eye is still red and the small bump by the iris hasn’t gone away, but the blobby stuff has finally disappeared.

Eleven week post-op appointment:

I could see letters on the top line of the ophthalmologist’s eye chart, although I couldn’t distinguish what they were. My IOP is now balanced at 15mmHG in each eye. The ophthalmologist wants me to continue with the Azarga drops to control ocular hypertension.

Structurally, my eye looks really good, so at the end of August he’ll do a vitrectomy to remove the oil. He’ll replace the oil with air, which dissipates on its own in a matter of weeks. He explained the surgical dangers—possible redetachment, risk of infection, increased chance of forming cataracts. He said I’m already well down the road to needing cataract surgery, which surprised me because I’ve never been told that before.

I asked if the scleral buckle surrounding my eyeball might be pressing on nerves, causing my pupil to be nonreactive. He didn’t think so, but said nerves might’ve been damaged during surgery. He prescribed Pilocarpine eye drops to mechanically constrict the pupil, which will hopefully ease my light sensitivity.

A single drop of Pilocarpine shrunk my pupil to a pinprick, and it took thirty-six hours to return to its dilated size. The constricted pupil didn’t reduce the glare or haloing from lights, and because a possible side effect of Pilocarpine is retinal detachment, I won’t risk using it again. The light sensitivities are likely an issue with the retina, not the pupil.

Fifteen weeks post-op:

Eye redness isn’t as noticeable, and I rarely have pain. Besides the dilated pupil and the small bump by my iris, there’s little external evidence of the surgery.

Unfortunately, there are plenty of invisible changes. Despite slight improvements, I have no functional vision in my right eye. I still have issues with double vision, light sensitivities and depth perception. Until the oil in my eye cavity is removed, I won’t know if it contributes to these problems. For now, I can only hope for continued progress, while accepting the possibility of a less positive outcome.

Next week, I’ll wrap up my series on torn and detached retinas. Jump to that post HERE.


A Belt, A Buckle and Suspenders – Surgery To Repair A Detached Retina

To repeat my introduction from last week: In December 2016, I experienced a retinal tear in my left eye, which has left me with unstable vision. In April 2017, I had a vitreous hemorrhage in my right eye, and still don’t know the full outcome from that episode. I want to reiterate the importance of recognizing and understanding the symptoms and dangers of torn or detached retinas.

As our eyes age, the clear vitreous gel that fills the central eye cavity liquefies and separates from the retina. This is a natural occurring event that happens in most people between the age of forty and seventy. When the gel separates, a person will often see floaters—dots, spots or curly lines, which move with the eye. Usually this quickly settles down and everything returns to normal. Sometimes, most often with people who are extremely nearsighted, the retina will tear or detach when the gel separates. A vitreous hemorrhage can occur when blood vessels are damaged during the above process, filling the eye cavity with blood.

If you experience any of these symptoms, seek immediate medical attention.

Catch up on my previous posts here.

After another restless night, on the morning of my surgery I woke up with a splitting headache. Lack of sleep and nervous tension, I imagine. Hubby had me at Mount Saint Joseph Hospital half an hour ahead of my appointment. At eight o’clock, I was taken to a curtained cubicle to change into a hospital gown. Eye drops were administered and I answered all the same medical questions I’d answered the previous day.

An anesthesiologist put an IV in my hand and explained he’d be injecting a local anesthetic into my eye in two places. He told me it wouldn’t hurt as much as getting the IV, which had actually stung quite a bit. The first injection into my eye was really unpleasant, but thankfully the pain was brief. My eye was frozen enough when he did the second injection that I didn’t feel anything.

Around 10:00, I was brought into surgery. The anesthesiologist touched my upper cheek and apologized for bruising me while freezing my eye. I assured him I bruise easily. A sheet was placed over my face, leaving only my eye exposed. I heard someone ask the retinal surgeon which procedures he’d be using. The doctor joked he’d be doing the belt, the buckle and suspenders, meaning he needed to do several procedures besides the scleral buckle.

During the procedure, I occasionally felt sensations in my eye, but no real pain. At one point the surgeon said, “Oh my God!” in a rather strained voice, then he asked for PFO. Seconds later, he repeated more urgently his request for PFO. Definitely not what I wanted to hear from the person operating on my eye, and I made a point to remember those words so I could ask what this meant.

After surgery, the surgeon told me I needed to get on my tummy right away, then he left. Because I didn’t get a chance to ask him about PFO, I’ll explain what my local ophthalmologist told me. PFO’s full name is Perfluoro-N-octane, and it’s a heavy liquid used to flatten the retina during complex detachment surgery. Although he couldn’t say for certain because he wasn’t there, he believes the surgeon must’ve been having difficulties getting my retina to stay flat.

I got back to the cubicle at 11:00, so surgery took approximately one hour. I had a shield covering my eye, and the nurse instructed me on the importance of keeping my head postured down for the next 24 hours. Silicon oil had been inserted into my eye cavity during surgery—more on that in my next post—and facing downward, even while sleeping, ensures the oil bubble floats to the back of the eye to keep the retina flattened.

Hubby arrived soon after to take me back to the hotel. He picked up some straws, so I could still drink with my head down, and he also bought a selection of tempting foods. Despite missing breakfast and lunch, I felt too queasy to eat much. I had surprisingly little eye pain, but between the pounding headache I’d woken up with and my arthritic neck complaining about the position I had to keep it in, I was extremely uncomfortable. I alternated between lying on my stomach with my forehead resting on a pillow, which gave my neck a break but tensed up my shoulders and back, and sitting with my face supported in my hands and my elbows braced on my knees.

Next week, I’ll go over all the procedures used during surgery, and explain what I was told in my follow-up appointment the next morning. (Next week’s post)